The Brisbane Burn Scar Impact Profile (caregiver version for children older than 8 years) is reliable and valid for measuring health-related quality of life in children with burn scars.

Dr Megan Simons1,2, Professor Roy Kimble2,3, Dr Zephanie Tyack2,4

1Lady Cilento Children’s Hospital, Brisbane, South Brisbane, Australia, 2Centre for Children’s Burns and Trauma Research, Child Health Research Centre , South Brisbane, Australia, 3Department of Paediatric Surgery, Urology, Neonatal Surgery, Burns and Trauma, Lady Cilento Children’s Hospital, South Brisbane, Australia, 4Centre for Functioning and Health Research, Metro South Health, Buranda, Australia

Abstract:

This presentation reports the psychometric properties of a caregiver version of the Brisbane Burn Scar Impact Profile (BBSIP). The BBSIP is a burn-specific health-related quality of life (HRQoL), patient-report outcome measure consisting of 10 dimensions: overall impact; sensory symptoms; mobility; daily activities; friendships and social interaction; appearance; emotional reactions; physical symptoms; parent worries and parent concerns.

Data was collected between 2013 and 2016. A 1 to 2-week interval was used to test reliability and validity and a 1-month interval for longitudinal validity. Test-retest reliability was tested using intra-class correlation coefficients and concurrent validity using Spearman’s rho to test pre-specified hypotheses and correlations between change scores.

Sixty-three caregivers of children aged 8 years to 14 years, 11 months participated (median TBSA 1% [IQR = 2%, range <1%-26%]). Reliability was supported for dimensions expected to be stable (ICC = 0.75-0.86). Correlations with similar constructs from the POSAS (patient report) and PedsQL were small to large at baseline (ρ = 0.23 to 0.6; ρ = -0.31 to -0.73) and 1-month later (ρ = 0.18 to 0.54; ρ = -0.16 to -0.59) supporting validity.

The use of a reliable and valid burn-specific HRQoL measure to identify young children and adolescents at risk of health problems will be discussed. Scoring algorithms will be described. The BBSIP can aid in determining the burden of burn scarring on patients and families as well as reliably measuring the effectiveness of interventions on burn scarring over time in a paediatric population.


Biography:

Dr Simons has completed research alongside the clinical, management and research capacity building position she currently holds. Dr Simon’s main area of research is paediatric burns, particularly understanding patient perspectives of burn scarring, with a focus on health-related quality of life and patient-reported outcome measures.