Dr. Zephanie Tyack1,4, Roy Kimble1,2, Anita Plaza 3, Steven McPhail4,5, Megan Simons1,6
1 Centre for Children’s Burns and Trauma Research, Children’s Health Research Centre, 62 Graham Street South Brisbane, QLD, 4101. firstname.lastname@example.org; email@example.com
2 Surgical Directorate – Lady Cilento Children’s Hospital, 501 Stanley Street South Brisbane, QLD, 4101, firstname.lastname@example.org
3 Physiotherapy Department, Royal Brisbane and Women’s Hospital, Butterfield St, Herston, Brisbane, Queensland 4006, Australia, Anita.Plaza@health.qld.gov.au
4 Institute of Health and Biomedical Innovation, School of Public Health and Social Work, Queensland University of Technology, Kelvin Grove, QLD, Australia, email@example.com
5 Centre for Functioning and Health Research, Metro South Health, Buranda, QLD, Australia
6 Occupational Therapy Department – Lady Cilento Children’s Hospital, 501 Stanley Street South Brisbane, QLD, 4101, firstname.lastname@example.org
The Brisbane Burn Scar Impact Profile (BBSIP) was developed as a measure of health-related quality of life for people with burn scars with subscales including sensory, physical and emotional symptoms; work and daily activities, appearance, relationships and social functioning. This study aimed to test the psychometric properties of the BBSIP – adult version (i.e. longitudinal validity, reproducibility, responsiveness and dimensionality).
A longitudinal cohort study was conducted with testing at three time-points (at 95% wound healing, 1 to 2- weeks later and 1-month later). Participants included adults at risk of, or with, post-burn scarring. Data were analysed using correlation and reliability coefficients, smallest detectable change (SDC) and factor analyses. Longitudinal validity was tested using the 36-item Short Form Health Survey (SF-36) and Patient Observer Scar Assessment Scale (POSAS). Factor analysis was applied to item groupings (including the frequency and intensity of sensory symptoms).
Participants included 124 adult participants (mean (SD) age = 39 (15)). Longitudinal validity of the subscales of sensory symptoms, work and daily activities, appearance, and relationships and social functioning and physical symptoms was generally supported (≥75% of hypothesised correlations supported). Reproducibility was generally supported for sensory and emotional symptoms, appearance, and relationships and social functioning but was lower than expected for physical symptoms [SDC = 1.83 – 3.99 on 5-point scales]. Factor analysis supported the unidimensionality of select item groupings into subscales.
The psychometric properties of the BBSIP – adult version were generally supported. Further testing should be conducted in adults 6-months or more post-burn.
Burns, scar assessment, health-related quality of life
Dr Tyack is a Research Fellow with the Centre for Children’s Burns and Trauma Research. Her research interest areas are the health-related quality of life, burn scarring, and the burden of disease in people with chronic diseases including burns. She is also involved in studies investigating comorbidity and complex chronic diseases.