Feasibility and acceptability of quality of life measures used in the paediatric outpatient clinic

Dr Lisa Martin1, Ms Melissa Papini2, Professor Fiona  Wood1,2

1University Of Western Australia, Connolly, Australia, 2Fiona Wood Foundation, Murdoch, Australia, 3Perth Children’s Hospital, Nedlands, Australia

Abstract:

Burn injury has significant physical and psychological sequelae. Patient-reported quality of life measures are important tools to monitor recovery and identify problems that might be undetected. Routine collection of these in the paediatric burn outpatient clinic can be used as a part of clinical practice.  However, these can be a burden to patients.

The PedsQL is an age-specific generic quality of life measure used in many areas of health care, including burns.  The Brisbane Burn Scar Impact Scale is a burn specific outcome measure that focusses on burn scarring, and the CARe Burns Scale is a burn specific outcome measure that focusses on all aspects of burn recovery.

These three measures were assessed for their use with parents and patients at 6 weeks or later after burn. In this audit the feasibility and acceptability to parents and patients was explored.  Ease of use, time taken and compliance for completion for each measure are presented.


Biography:

Lisa is a research fellow who has worked in burns research for the past ten years. Her nursing background was in critical care, followed by clinical trials and research nursing in general medicine and cardiology. She has recently completed a PhD in psychological recovery after adult burn and currently has secured funding for post-doctoral work to continue her work in this area.  She has a strong interest in burn prevention and is an active member of the ANZBA prevention committee.

About ANZBA

ANZBA is a not for profit organisation and the peak body for health professionals responsible for the care of the burn injured in Australia and New Zealand. ANZBA encourages higher standards of care through education, performance monitoring and research.

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