A/Prof. Dale W. Edgar1,2,6,7, Ms Yvonne Singer3,4, Ms Elizabeth Capell3,4, Ms Hannah Bailey5, Mrs Tiffany Ryan1,7, Mrs Helen Scott3, Ms Ananya Vasudevan5, W. Prof Fiona M. Wood1,6, Prof Lewis E. Kazis5
1State Adult Burn Unit, Fiona Stanley Hospital, Murdoch, Australia, 2The Institute for Health Research, The University of Notre Dame Australia, Fremantle, Australia, 3Victorian Adult Burn Service, The Alfred, Prahran, Australia , 4School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia , 5Department of Health Law, Policy and Management, Boston University School of Public Health, Boston, USA, 6Department of Surgery, Burn Injury Research Unit, School of Medicine, The University of Western Australia, Crawley, Australia, 7Faculty of Medicine, Nursing and Midwifery and Allied Health Sciences, The University of Notre Dame Australia, Fremantle, Australia
Introduction: The literature on long term rehabilitation after burns suggests that quality of life for individuals is driven by their ability to return to a productive role in their inner (family, friends) and outer (peers, employer) social circles. Instruments specifically tailored to measure the QOL among patients with burns are limited. To address this deficit, the Life Impact Burn Recovery Evaluation (LIBRE) tool was developed in the USA by Prof Kazis, in collaboration a version, specifically for Australia (Aus-LIBRE) has been developed.
Methods: After reverse translation of the US version was completed, the cognitive assessment commenced as Phase 1, 20 pilot patients across the two study sites, to confirm the style and language of the translated measure.
In Phase 2, the study will be validated statistically from patients who complete the LIBRE and previously validated surveys. In Phase 3, a sub-group of ~100 participants will be asked to repeat the LIBRE (within two weeks of Phase 2 capture) to calculate the reliability and sensitivity. Subjects are administered the LIBRE Fixed Form Profile with the VR-12 and EQ5D-5L in parallel. Analysis will include six LIBRE Profile scales (each scale is 10 items) and legacy measures (VR-12 physical and mental summary scores and the EQ5D that assess similar constructs).
Results: The final version of the Aus-LIBRE will be available for release at ANZBA 2021.
Conclusion: It is hoped that other Australian sites may join the study and increase the Phase 2 sample size and therefore, enhance the generalisability of the population baseline.
Assoc Prof Dale Edgar is a clinical physiotherapist, researcher and academic lecturer. For the past 14 years, Dale has led a multidisciplinary research team primarily focussed on improving outcomes through early rehabilitation using exercise therapies in adult acute burn survivors and more recently, translating those research findings into improvements in other patient populations.